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Not By Sight!

 

 

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A Guide to Ministering to Believers Living with Chronic Illness and Pain.

 

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Not By Sight

Helps friends and family see the incredible courage and faith in believers living with chronic conditions!

 

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But You LOOK Good

But You LOOK Good!  

A Guide to Understanding and Encouraging

People Living with Chronic Illness and Pain!

  

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But You LOOK Good! gets to the heart of why our friends and family members have difficulty with continuing illness and pain. It helps them to understand that even though a person with a chronic condition may LOOK good, it does not mean they FEEL good! Moreover, it gives them simple, pragmatic ways to truly be an encouragement, "What to say," "What not to say" and "Why," along with "How to help."

 

But You LOOK Good! gives those living with chronic illness and pain a voice about how they feel, what  they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!

This booklet gets to the heart of why our friends and family have difficulty with understanding ongoing illness and pain. It serves as a tool to help explain to loved ones how extreme fatigue, pain, dizziness, cognitive impairments and other symptoms can be limiting, even though the person may not "look" sick or in pain. Moreover, it gives them simple, pragmatic ways to truly be an encouragement, "What to say," "What not to say" and "Why," along with "How to help."  Often loved ones are enlightened as to why their well-meaning advice is not always well-received. It is cherished by both those living with illness or injury, as well as those who love them!

But You LOOK Good! is printed and distributed by The Invisible Disabilities Advocate.  It is based upon the knowledge learned by the true life experiences of Wayne and Sherri Connell, as well as countless others who live with debilitating conditions.

"I just finished reading your booklet and feel like bawling in relief that you have identified and eloquently described what is helpful and what is not for people with chronic illness. You put into words what I have felt for 20 years! Now I can pass this information on to my family and friends and others who suffer." ..... Sandy, Colorado

 

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Proceeds Go to Where Is God Ministries,

a Colorado Non-Profit Organization.

 

Why This Book Was Written

 

All of her life, Sherri Connell was an extremely active person who loved her careers, singing and dancing in musicals, modeling, riding her horse and lifting weights. She started having health problems when she was 14, but did not know why. Despite chronic headaches, constant bouts with strep throat, the flu and bronchial pneumonia, Sherri was an active, goal oriented "go getter." In college, she studied Music Theatre, then obtained 2 Bachelor Degrees in Business, with a Minor in Liberal Arts.

    

Although Sherri had enormous plans and goals, her life took an unexpected turn. Just as she was plotting out her Master's Degree, she was stopped in her tracks at the age of 27. Starting with another winter bout of pneumonia, Sherri became paralyzed and so sick she could barely sit up. She was hospitalized and diagnosed with Progressive Multiple Sclerosis and it was later discovered she also had Late-Chronic Lyme Disease from a tick bite when she was 14. The diagnosis really did not scare her, because she figured she could still work and sing from a wheelchair. Nothing had ever stopped her before and nothing was going to stop her now!

    

Much to her dismay, her health never improved, but quickly worsened. Due to extreme flu-like symptoms such as bone-crushing fatigue, severe nerve pain, cognitive dysfunctions, memory loss, dizziness, heart arrhythmias, weakness, nausea and migraines, Sherri was never able to return to work. This was extremely difficult for her, because she had been working since she was 13 and her work was her life! She did regain some of the use of her legs through much rehabilitation, but she still cannot stand very long or walk very far. Sherri's life suddenly went from "on the go 24/7" to struggling just to get to a doctor's appointment, get a meal or take a shower.

    

Despite the seriousness of Sherri's illness, people often had difficulty understanding how she could "look good" to them, even though she was very sick. Unfortunately, because of these misconceptions, people often jumped to the conclusion that she was just being lazy, unmotivated or was not trying hard enough. For a goal oriented, talented, career driven person like Sherri, these notions were absolutely devastating. In fact, Sherri wanted her life back more than anyone as she continued to go from doctor to doctor, as well as try countless treatments, therapies and surgeries.

    

Unfortunately, Sherri remained plagued by hurtful comments and assumptions from those around her. Determined to grasp how people came to these conclusions, she began writing in her journal about her losses and the responses of others. In the article, "A Private Write," Rochelle Ratner explained, "The process of forming thoughts into words and the physical act of drawing the hand across the page, typing on a keyboard, or talking into a tape recorder slows rushing thoughts and pulls the attention into focus." Since Sherri continued to grapple with verbally explaining to people what she was going through, she began printing copies from her journal to share with others.

 

One day her husband, Wayne Connell, offered to post some of her journal entries on the internet so that they could just tell people, "Go check out the website," instead of stumbling to find the words to explain. Much to Wayne and Sherri’s amazement, as the word spread like wildfire, emails started pouring in from people around the globe. These readers who lived with various chronic conditions told countless personal stories of losing cherished relationships with friends and family members, because of the complexities of their "invisible" disabilities. Nonetheless, people were ecstatic to tell Wayne and Sherri that the journal entries had "put into words" exactly what they had been trying to say to their loved ones.

 

Wayne then discovered there were millions of other people around the world being hurt by the same lack of understanding and belief that Sherri was experiencing. His passion quickly grew from being his wife's supporter, to being an advocate for all who are living with disabilities.

    

 

Thus, Wayne founded, The Invisible Disabilities Advocate and compiled this booklet, But You LOOK Good!, which contains excerpts from Sherri’s journal. This booklet serves as a guide to enlightening people with "what to say," "what not to say" and "how to help" someone living with a debilitating condition. In order to give a voice to those living with chronic illness and pain, IDA prints and distributes this booklet.  Proceeds go to IDA, a Non-Profit Organization.

 

Booklet Ordering and Pricing!

 

In the US

In Canada, Hawaii and Alaska

International

 

Proceeds Go to Where Is God Ministries,

a Colorado Non-Profit Organization.

 

"My husband read it straight away and I actually got a cup of tea in bed this morning, what a treat!" ..... Kris, Australia

 

But You LOOK Good!

© Copyright 2004

The Invisible Disabilities Advocate

   

 

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© 1999-2008 Where Is God Ministries. All Rights Reserved.

WIGM is a Colorado Non-Profit Organization.