Why This Book
Was Written
All
of her life, Sherri Connell was an extremely active person who loved her
careers, singing and dancing in musicals, modeling, riding her horse and lifting
weights. She started having health problems when she was 14, but did not know
why. Despite chronic headaches, constant bouts with strep throat, the flu and
bronchial pneumonia, Sherri was an active, goal oriented "go getter." In
college, she studied Music Theatre, then obtained 2 Bachelor Degrees in
Business, with a Minor in Liberal Arts.
Although Sherri had enormous plans and goals,
her life took an unexpected turn. Just as she was plotting out her Master's
Degree, she was stopped in her tracks at the age of 27. Starting with another
winter bout of pneumonia, Sherri became paralyzed and so sick she could barely
sit up. She was hospitalized and diagnosed with Progressive Multiple Sclerosis
and it was later discovered she also had Late-Chronic Lyme Disease from a tick
bite when she was 14. The diagnosis really did not scare her, because she
figured she could still work and sing from a wheelchair. Nothing had ever
stopped her before and nothing was going to stop her now!
Much to her dismay, her health never improved,
but quickly worsened. Due to extreme flu-like symptoms such as bone-crushing
fatigue, severe nerve pain, cognitive dysfunctions, memory loss, dizziness,
heart arrhythmias, weakness, nausea and migraines, Sherri was never able to
return to work. This was extremely difficult for her, because she had been
working since she was 13 and her work was her life! She did regain some of the
use of her legs through much rehabilitation, but she still cannot stand very
long or walk very far. Sherri's life suddenly went from "on the go 24/7" to
struggling just to get to a doctor's appointment, get a meal or take a shower.
Despite the seriousness of Sherri's illness,
people often had difficulty understanding how she could "look good" to them,
even though she was very sick. Unfortunately, because of these misconceptions,
people often jumped to the conclusion that she was just being lazy, unmotivated
or was not trying hard enough. For a goal oriented, talented, career driven
person like Sherri, these notions were absolutely devastating. In fact, Sherri
wanted her life back more than anyone as she continued to go from doctor to
doctor, as well as try countless treatments, therapies and surgeries.
Unfortunately, Sherri remained plagued by
hurtful comments and assumptions from those around her. Determined to grasp how
people came to these conclusions, she began writing in her journal about her
losses and the responses of others.
In the article, "A Private Write," Rochelle Ratner explained, "The
process of forming thoughts into words and the physical act of drawing the hand
across the page, typing on a keyboard, or talking into a tape recorder slows
rushing thoughts and pulls the attention into focus."
Since Sherri continued to grapple with verbally explaining to people what she
was going through, she began printing copies from her journal to share with
others.
One day her husband, Wayne Connell, offered to
post some of her journal entries on the internet so that they could just tell
people, "Go check out the website," instead of stumbling to find the words to
explain. Much to Wayne and Sherri’s amazement, as the word spread like wildfire,
emails started pouring in from people around the globe. These readers who lived
with various chronic conditions told countless personal stories of losing
cherished relationships with friends and family members, because of the
complexities of their "invisible" disabilities. Nonetheless, people were
ecstatic to tell Wayne and Sherri that the journal entries had "put into words"
exactly what they had been trying to say to their loved ones.
Wayne
then discovered there were millions of other people around the world
being hurt by the same lack of understanding and belief that Sherri was
experiencing. His passion quickly grew from being his wife's supporter,
to being an advocate for all who are living with disabilities.
Thus, Wayne founded, The Invisible
Disabilities Advocate and compiled this booklet, But You LOOK Good!, which
contains excerpts from Sherri’s journal. This booklet serves as a guide to
enlightening people with "what to say," "what not to say" and "how to help"
someone living with a debilitating condition. In order to give a voice to those
living with chronic illness and pain, IDA prints and distributes this
booklet. Proceeds go to IDA, a Non-Profit Organization.