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"I
woke up feeling better than usual and I'm not a morning person. I was
driving to work and pulled into the parking lot when everything around
me began spinning so fast I couldn't see anything and didn't know where
I was. I held onto the steering wheel and the pinwheel feeling lasted a
few minutes. Finally it settled enough so that I could see the horizon
and I pulled my car over. That was the last time I drove."
Dr. Carrie Carter
had spent years studying to become knowledgeable about medical
conditions and nutritional supplements. But in the fall of 1999 she
entered a new phase of education: the life of a person with a chronic
illness. Diagnosed with Meniere's Disease, a chronic, incurable inner
ear disorder, life changed dramatically. But as author of Thrive: A
Woman's Guide to a Healthy Lifestyle (Bethany House Publishers) and
Mom's Health Matters (Zondervan, and endorsed by MOPs), both released in
2003, God has redirected her life in a way she could not have imagined
just five years ago.
She brings us a
unique perspective: That of a doctor who has listened to patients who
looked fine but felt terrible. But also a doctor who feels poorly
herself, but is told "Gosh, you look great! You must be doing so
well!"
"There's something in me," shares Dr. Carter, "that rises
up and wants to say, 'but I'm still sick! I really am!' I have a measure
of health that varies in quantity and once I use it up, I'm done until
it's replenished-however long that takes. I want people to understand
that and yet it shouldn't matter what people think. . . But it does.
It's that in between place that is very weird."
I sat down with
Dr. Carter to discuss her journey of living with a chronic illness, her
new books, her radio programs-and how God fits into it all. With great
emotion she shared her story, in hopes that it will encourage you. Yes,
even doctors get sick.
HK: What are the
most difficult parts of your day?
CC: Fatigue and
any visual movement, like walking down grocery store aisles, causes
vertigo. Vertigo is different than being dizzy. It's extreme and
unpredictable, sometimes I have several episodes a day. The severe
fatigue is hard to describe. If I ride on an airplane or go to an event,
I have to pay for it for days. But I'd rather not be housebound. I'd
rather live and have these experiences, and know that when I come home
I'll have to spend five days in bed. That's the price, but it's better
to live and do as much as I can with my family whenever I can.
As a doctor, the
fatigue was one of the things that surprised me the most; it's one of
those symptoms most people with any chronic illness experience. I also
lose my memory. It's extremely scary. I had cognitive testing and
discovered that I was basically coming in under average in the ability
to think and process memory-very scary! Thankfully, I got through the
worst part and my memory has mostly returned, but it's very hard for my
family. One day I'm very bright and capable and the next day I'm telling
my son, "that thing over there." I can't remember what a chair
is called. It's frustrating and very humbling.
HK: How do you see
God using illness in your life?
CC: I learned the hard way that I'm not invincible. Last year I went to
CBA [Christian Booksellers Association conference] and it worked out
that I went alone and overscheduled myself, but in the moment I was
doing well physically. I felt wonderful, the best I'd been in four
years. I expected once I got home I'd be in bed a few days, but I was
stuck in bed for six weeks. I cancelled all kinds of things.
HK: Yes, It's hard
to know when God is giving you a gift and you want to enjoy it; you're
saying, "Thank you, Lord. You knew I needed this." Then you
get home and realize you took a little too much of the gift. It was a
small gift and you took a larger portion.
CC: Exactly. I often think, "God, You've given me this wonderful
opportunity [to write, practice medicine, etc.]. Now, what I am supposed
to do with it?" But I've had the most amazing blessing to write two
books that came out in 2003. They were literally a gift from God;
groundwork I had laid years before coming to fruition.
I've stopped asking God "Why do I have this disease?" I've had
five surgeries, all the medicines, alternative medicines and therapies,
and they've only helped a little. I've stopped asking, "Why
me?" but I still get really angry at God. I don't understand. Those
six weeks were very sobering, laying in bed, unable to even read or
watch TV. I don't understand why.
CC: First, that I needed to learn to be honest with God about my
feelings-and they are not pretty. I know some people can honestly say,
"I'm just trusting God and everything is going to be fine." My
feelings don't fit that mold. They can be ugly-but I've discovered that
God can handle it. . . And that He wants that intimacy with us. There
were times I didn't talk to God at all. I was so mad that He wasn't
answering my prayers to be healed because I knew He could do it and He
could do it like that (snap).
I've also learned to celebrate the little miracles. I was able to get
disability and social security without a whole lot of hassle. I have a
wonderfully understanding family. God is providing even though He isn't
answering my prayers. Paul says, in Philippians 4:6 to bring everything
-the good, the bad, and the ugly to God in prayer and petition. Tell God
the truth. I had to realistically come to terms with the fact that I may
have this illness the rest of my life-and I don't want that and I'm mad
about it. But then Paul says, "with thanksgiving, present your
requests to God." I've learned the thanksgiving part. It doesn't
make sense to be thankful when you're mad-it just doesn't! But when you
do. . .it's miraculous. In order to survive, I have to choose to
exercise thanksgiving. I consciously find something each day that I am
thankful for Some days that is just, "Thank You for giving me an
illness which I'm not dying of." Sure, it's taken away the life I
had, but my son won't face life without a mother. But I don't think we
should sugar-coat it and try to force ourselves to be positive all the
time because that can keep one in denial.
HK: Tell me about
the response you've had from others about your illness.
CC: A lot of people have a hard time accepting my illness. The Christian
community expects me to be healed and they feel anguish that I've not
been. A lot of times I feel I have to explain to them, "I'm really
not doing anything wrong that's preventing me from being healed!"
I've tried everything. About two years ago I had the surgery that would
probably work and it didn't; it took me a long time to recuperate too. I
got low. So low that if I could have gotten to the bathroom and the big
bottle of pills it would have been a tempting offer-but I made sure that
couldn't happen. But it was revealing-and God met me there. I felt Him
tell me, within my heart, "Sometimes I answer your prayers for
healing by teaching you how to live with what you've got."
That was exactly what I needed to hear. I hope that's not His final
answer, but He has taught me how to live with what I've got. . . And a
lot of people have a hard time hearing that. They say, "You just
need to pray more; you just need to try this supplement; think more
positive!" They mean so well, but it's so exhausting. When I can
barely have a conversation, and then I have to go beyond that and
explain, "No, just because I'm not taking that doesn't mean I'm
giving up. . ."
At the beginning I had visits from my staff and partner. Nobody knew
what to do to help. They feel powerless and it's hard for them to know
if they should call or not. The biggest thing that helped me was my
office got a huge card and had the families of my patients sign it. I
treasure it. Because when you're so sick, and all your abilities are
taken away, it's nice to know someone still remembers what you could do
and still values you. People bringing meals was the most helpful thing.
One family in my church has provided a meal every week for years. It's
impossible to express how much that's meant to us. Most people fall by
the wayside. I don't blame them, people are busy, but it gets more
isolating. I have months of feeling isolated, but I don't feel well
enough to invite someone over to do something. It can be tough.
Read more of Dr. Carrie Carter's interview in the
March/April 2004 issue of HopeKeepers Magazine.
Order this back issue by clicking here.
Visit Dr. Carter's Website
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